Showing posts with label medical. Show all posts
Showing posts with label medical. Show all posts

Tuesday, March 26, 2013

The 2013 Buddy Walk

By Bixyl Shuftan

For the second half of March, the Buddy Walk Fair and Expo is taking place in Second Life. The Buddy Walk is a yearly event created to raise awareness of Down Syndrome, the most common chromosome abnormality in humans. The event is also to promote the acceptance and inclusion of people with the disorder. The condition is caused by a third copy of the 21st chromosome, and generally results in mental disabilities and other problems. About one in every 700 babies born in the United states is diagnosed with the condition.

According to a notecard from the event, the Buddy Walk was founded in 1995 by the National Down Syndrome Society. Seventeen events related to the Walk took place across the US. By 2008, there were more than 250 related events, including Second Life. This was the first year of the SL Buddy Walk, in which 170 residents attended, and 55,000 Lindens were raised. In 2012. over five hundred residents attended, and over 144,000 Lindens were donated for the event.

This year, the Buddy Walk is called the Buddy Walk Charity Fair and Expo, taking place over not a weekend, but over a two week period. Like last year, there are musicians performing at live events. With the addition of the charity fair, there are stores, "Each designer has made at least two items that the proceeds  will go directly to the walk." There is a walk pathway, but there is no scheduled walk for everyone. The notecard stated this was due to "the limitations and lag of SL" in addition to residents living in different time zones.


While paying a visit to the Expo near the end of opening day, I ran into Lilly Juno, the person to contact about information about the Buddy Walk. "This has been so great," she told me, "a lot of work, but love it. I worked hard to make sure we (had) a full house, and mo missing stores. … Designers help drive a lot of traffic."

Lilly told me they had raised 31,000 Lindens on the first day, "This event is so important. It's the first time we are doing it like an expo." She had been approached after the end of the 2012 Buddy Walk about the expo idea, "I told her I will do it id she didn't know how … I wanted to make sure we can get the awareness out there."  They had a number of musicians coming in to perform, such as Maximillion Klene and Edward Kyomoon.

Of the shops, "It's something very special to me to see so many great designers and some that step in when I need a few. I had a few designers that stepped in at the last minute to fill a few needed spots." All stores had at least two items in which 100% of the sales went to the walk, "Some are only doing two items, and then some are doing three, four, and six items. And then the rest of the store is 50% donations. And some stores are only (having) the donation vendors only. We only asked they make some of the vendors for donations."

Lilly added that there was an advertisement on SL TV for the Buddy Walk, on Pulse TV.

Lilly went on to say when the Buddy Walk for 2013 is finally done, she will be working for another event, "next month my event company is running the  Parkinson charity."

"There is much to say," Lilly told me of the Buddy Walk Expo, "so many have come together to make this event possible. When I was looking for designers, some people got some for me or IMed friends who knew some. They were all so great in helping me. This is my first huge event. I have hosted events before this, but nothing of this level, I am still learning. We would like to see feedback, and make this event better next year too."

"If you think about it, we are all the same in many ways, you, me, anyone. No matter what sex or race a person is, we all have feelings. We all have fears. We all have learning issues. Some are better at one thing or another, but we all can't be Beethoven. But we can stand up together to support what matters to each of us."

The Buddy Walk Charity Fair and Expo is at Relaxation (133, 104, 28)


Bixyl Shuftan

Saturday, February 19, 2011

Stop Epilepsy Our SL Way

Second Life raised L$ 166,628 for National Epilepsy Foundation with 25 hours of live music in one weekend. Lead organizer VanMorrison Mint cheered our donations upwards, as she, her friends and loved ones: Krrick Moonites, Keeba Tammas, Patch, and many others... organized a wonderful musical fundraiser for medical research in Second Life (SL).

In picture 2, Clairede Dirval literally rocks us out with her fearless brand of singing, songwriting, and guitars. Joining her onstage in this miracle weekend, numerous live musicians, including: Quinton Whitman, Bones Writer, Bart and Whirligig, Annan Dreamscape, Paul Nowles, Grateful Stryker, Evamoon Ember, Strum Diesel, Keeba Tammas, Lehman Shinn, BellaDonna Lemondrop, PMANN Sands, ReggieSunset Rookswood, Onehempcat Oldrich, Caoilte Skytower, Mack Humbridge, Clairede Dirval, EricSteffensen Mistwalker, Gregg Huet, KevinMThomas Carpool, LaidBack Celt, Phemie Alcott and Vincent Merrick. All in order of appearance! Imagine that!

In Second Life, we all help each other and pitch in for a good cause. Organizers and live musicians donate their valuable talents and time to charity. Audience members send invites to their friends, fill the house, and have a rockin good time, whilst going wild for our new favoriate charity. Events like this, while impossible to attract this fabulous talent in RL, can be readily pulled together in a fortnight or two. See the story's end for my free event training.

Epilepsy affects 50,000,000 people worldwide; almost 90% of those are in 3rd world developing countries. It is a neurological disorder that can be genetic or trauma induced, e.g. head injuries. Epilepsy is treatable, but hard to diagnose, with very personalized symptoms. Like many other conditions, patients go through numerous physicians until they find treatment that works for their case. It's frustrating at best. Epilepsy can be life threatening, as SL friends discovered, in stories past: http://ireport.cnn.com/docs/DOC-372726

For more information about Epilepsy:

http://www.outoftheshadows.com/index.cfm
http://www.epilepsyfoundation.org/

At the fundraiser, I met SL citizen Epileptic Dreddmore, who said: "I have been trying to create awareness for Epilepsy in SL since September." Diagnosed with the disease at a young age, Epileptic has since, "I have joined SL I have met more people touched by Epilepsy or who have it than I have in my entire life."

SL is a great platform for networking and raising awareness, and I hope to see many more events like this live music marathon raising Epilepsy awareness!

Isn't Second Life grand... there I am with a bunch of good friends, GREAT LIVE MUSIC, and sync dancing with new friend Mette Jarvinen, and many wonderful friends (Picture 3), having the best times of our lives, for a good cause, for charity. IMHO, this is what Second Life is all about.

If you are interested in organizing great SL events like this one, but don't feel experienced enough, please join us at New Citizens Inc for free event organizer training, Sundays at 6:30am and Wednesdays at 9am SL time (US Pacific). Instant message me in SL (any1 Gynoid) for more information.

(Originaly printed in CNN)

Any1 Gynoid